Those fortunate enough to ride life's coattails should do the following: (1) Read all of the signs
(2) Take in every inch of the scenery (3) Be sure to digest each and every step.
THATS THE LESSON I LEARNED TODAY.
All I can say is....WHO KNEW?
Who knew that just two short years ago when we visited the maternity ward after the birth of Baby Gavin on Prospect Avenue or when we had an amazing dinner with friends at Gena's old apartment on Prospect Avenue...that we would be patients of a kidney transplant doctor on Prospect Avenue. Or better yet..facing an actual kidney transplant procedure on that very same Prospect Avenue.
In a sense, Ben and I can say that "we've been here before!"
What a small world.
Monday, February 18, 2008
Wednesday, February 13, 2008
YUCK
I don't know about you guys....especially the ones who live outside of Manhattan, but how gross is it outside? All of this rain, snow, sleet, trash, spit, wet dog crap..etc..etc is driving me NUTS!
These are the days I HATE NYC!
If I only had a driver( a girl can dream..cant she?), then i wouldnt have to exactly brave the elements. I could be dropped off, waited on and picked up
right in front..not too shabby. Maybe next year after all of this kidney stuff we can work on getting me a driver..lol.
Hopefully you all are staying warm and dry while you hop in and out of your cars in suburbia, or while you sit at your desks, or if you are furtunate, sitting at home.
As for me...the girl with the spit/poop on sidewalk phobia, wet days are the worst. You cant see whats what amidst all of the standing water.
See, i have a system..on a dry sidewalk you can easily spot wet spit spots, and poop piles and i stay CLEAR of all moisture. But when its wet and its all meshed together...its like finding a needle in the haystack!
If you only saw me trecking down 5th Avenue to my clients house this morning....though not as bad as some other streets..like LENOX AVE.. trying to navigate around the crap, spit, rain..and whatever else is mixed in on those sidewalks..eww. I was trying to somehow levitate myself above the sidewalk and float to her front door..but that didnt work. So i tried taking huge giant steps...that didnt work either because I had my work bag-on-wheels...and it almost made me fall.
So i had to suck it up and do what everyonelse was doing...just walk in the crap filled puddles.
Hope your day is going better than mine.
p.s...what's worst than this? Doing it at night, when you can see ANYTHING!
I'm trying to be home before dark.
These are the days I HATE NYC!
If I only had a driver( a girl can dream..cant she?), then i wouldnt have to exactly brave the elements. I could be dropped off, waited on and picked up
right in front..not too shabby. Maybe next year after all of this kidney stuff we can work on getting me a driver..lol.
Hopefully you all are staying warm and dry while you hop in and out of your cars in suburbia, or while you sit at your desks, or if you are furtunate, sitting at home.
As for me...the girl with the spit/poop on sidewalk phobia, wet days are the worst. You cant see whats what amidst all of the standing water.
See, i have a system..on a dry sidewalk you can easily spot wet spit spots, and poop piles and i stay CLEAR of all moisture. But when its wet and its all meshed together...its like finding a needle in the haystack!
If you only saw me trecking down 5th Avenue to my clients house this morning....though not as bad as some other streets..like LENOX AVE.. trying to navigate around the crap, spit, rain..and whatever else is mixed in on those sidewalks..eww. I was trying to somehow levitate myself above the sidewalk and float to her front door..but that didnt work. So i tried taking huge giant steps...that didnt work either because I had my work bag-on-wheels...and it almost made me fall.
So i had to suck it up and do what everyonelse was doing...just walk in the crap filled puddles.
Hope your day is going better than mine.
p.s...what's worst than this? Doing it at night, when you can see ANYTHING!
I'm trying to be home before dark.
Tuesday, February 12, 2008
WE ARE ONE....at least hoping so!
So, long story short, the kidney transplant team have decided to use my kidney.
But let me be clear, (contain your excitement) this just means that they've decided
to allow me to go through ALL of the steps in the living donor evaluation....only after successfully passing ALL of them we can definitively say I am giving Ben a kidney.
So far, i've been cleared as an ideal match..not a perfect one though...which is highly unlikely in most cases.. Usually someone related to the recipient is the best choice. But in this case because of predisposed high blood pressure, they chose to go outside the family..
We've since learned, the best thing is to get a kidney from a living donor rather than a deceased person. An ideal matched kidney from a NON-RELATIVE that has NOT gone throught the death/dying process - is a million times better than a PERFECT matched kidney from a dead person or a person that has blood related issues.
After a brief sigh of relief, I was then told to collect my urine for 24 hours to determine that my kidney was functioning normally...Lets just say, Urine collection is meant for boys not girls..if you get my drift.
My urine was ALL GOOD.
Then, a bunch of other test were conducted...I passed them all too.
Next week monday I have what i hope to be two of the last three test. An EKG to be sure my heart and body can live with only one kidney and a CAT SCAN to be sure my kidney is in perfect shape, If it will work in Ben's body due to his size and finally to map out the surgery route..i.e: which kidney to use and what route to enter and remove the kidney.
I'll let you know how it turns out..
But let me be clear, (contain your excitement) this just means that they've decided
to allow me to go through ALL of the steps in the living donor evaluation....only after successfully passing ALL of them we can definitively say I am giving Ben a kidney.
So far, i've been cleared as an ideal match..not a perfect one though...which is highly unlikely in most cases.. Usually someone related to the recipient is the best choice. But in this case because of predisposed high blood pressure, they chose to go outside the family..
We've since learned, the best thing is to get a kidney from a living donor rather than a deceased person. An ideal matched kidney from a NON-RELATIVE that has NOT gone throught the death/dying process - is a million times better than a PERFECT matched kidney from a dead person or a person that has blood related issues.
After a brief sigh of relief, I was then told to collect my urine for 24 hours to determine that my kidney was functioning normally...Lets just say, Urine collection is meant for boys not girls..if you get my drift.
My urine was ALL GOOD.
Then, a bunch of other test were conducted...I passed them all too.
Next week monday I have what i hope to be two of the last three test. An EKG to be sure my heart and body can live with only one kidney and a CAT SCAN to be sure my kidney is in perfect shape, If it will work in Ben's body due to his size and finally to map out the surgery route..i.e: which kidney to use and what route to enter and remove the kidney.
I'll let you know how it turns out..
new year ....new troubles!
I'm sure by now you've all heard the news.... My Babycakes' kidneys (yes BOTH) have failed! Actually, have been failing for some time....who knew? Truly a surprise to everyone.
I guess in hindsight, they were a few small signs...
Boy how our world has changed.
So, after the hospital stay and stabilization, Ben has started outpatient Dialasys tues, thurs and sat at 6:30 am. Hopefully not for long because the time sucks, but he doesnt seem to mind as much as i do...
We've been very blessed thus far..besides finding out before something really horrible like a deadly stroke happened, quickly finding amazing doctors who would quickly see us, being treated in a bloodless program, being pushed to the TOP of the four month waiting list to meet with the transplant team, having his two brothers tested within two weeks of diagnosis, we've discovered he has A UNIVERSAL RECEIVERS BLOOD TYPE which makes his body a more acceptable recipient. We've also discovered how many wonderful people we are very fortunate to have in our lives.
Thanks everyone for all of your calls, cards, visits and encouragement.
We are truly blessed.
I guess in hindsight, they were a few small signs...
Boy how our world has changed.
So, after the hospital stay and stabilization, Ben has started outpatient Dialasys tues, thurs and sat at 6:30 am. Hopefully not for long because the time sucks, but he doesnt seem to mind as much as i do...
We've been very blessed thus far..besides finding out before something really horrible like a deadly stroke happened, quickly finding amazing doctors who would quickly see us, being treated in a bloodless program, being pushed to the TOP of the four month waiting list to meet with the transplant team, having his two brothers tested within two weeks of diagnosis, we've discovered he has A UNIVERSAL RECEIVERS BLOOD TYPE which makes his body a more acceptable recipient. We've also discovered how many wonderful people we are very fortunate to have in our lives.
Thanks everyone for all of your calls, cards, visits and encouragement.
We are truly blessed.
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